Patient-oriented research is a term that refers to the partnership of patients, researchers, health professionals and other stakeholders in research activities. The goal is to transform the patient from the passive recipient to a proactive partner (SPOR, 2021).
"Patient" is a broad term that can apply to anyone who has lived experience of a topic; that is, knowledge that comes from experiencing it in real life rather than learning it from others. Since this term does not solely refer to individuals receiving care, this can apply to youth, caregivers, and more!
What are the benefits of patient-oriented research?
Many benefits of engaging patients have been identified. Patients are empowered and respected as professionals on a topic, therefore allowing them to have a voice in the decisions that affect them. They can also learn new skills and network with people in the field they're passionate about!
On the flip side, there are also many benefits for the research project as well. Patients have been found to support the prioritization of research questions, increase cultural and community relevance, enhance knowledge translation, and improve research outcomes like community wellbeing and equity!